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Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Building a Community Engagement Model for Rare Disease: A Community Ambassador Approach

Creating the Rare Disease Movement: The Power of the Patient Community

Creating the Rare Disease Movement: The Power of the Patient Community

Rare Disease Research and Teaching Initiatives in Academia

Rare Disease Research and Teaching Initiatives in Academia

RDD Webinar: Driving Awareness by amplifying Young voices in the Rare Disease community

RDD Webinar: Driving Awareness by amplifying Young voices in the Rare Disease community

WISDOM Ambassador Workshop (Saturday 10.09.21)

WISDOM Ambassador Workshop (Saturday 10.09.21)

Navigating the Challenges of Rare Disease Research with Dr. Harsha Rajasimha on BioTalk (EP.128)

Navigating the Challenges of Rare Disease Research with Dr. Harsha Rajasimha on BioTalk (EP.128)

Introduction to the Rare Voices Patient Ambassador Programme

Introduction to the Rare Voices Patient Ambassador Programme

Rare Disease Advisory Council Stakeholders Meeting

Rare Disease Advisory Council Stakeholders Meeting

Aman Ali, Anna Smith, Moestak Hussein and Naimah Callachand: How can we bridge the gap between di...

Aman Ali, Anna Smith, Moestak Hussein and Naimah Callachand: How can we bridge the gap between di...

Making of the UN Resolution

Making of the UN Resolution

Panel Discussion: The High Cost of Rare Diseases

Panel Discussion: The High Cost of Rare Diseases

Introduction to the Rare Disease Partnership Programme

Introduction to the Rare Disease Partnership Programme